Living with cystic fibrosis (CF) made me very aware of breathing. Before my double-lung transplant eight years ago, I’d check the weather before committing to any plans, because protecting my lung health from allergens, weather triggers, and anything that could cause inflammation was essential to my well-being. Since…
Discussion
Cutting-edge DNA sequencing technologies for microbial surveillance have the potential to revolutionize how lung infections in people with cystic fibrosis (CF) are diagnosed and managed, according to a new review study. However, researchers noted that there are still challenges that need to be overcome before these technologies can be…
Discussion
Use of Trikafta, an approved oral medication for cystic fibrosis (CF), can reduce airway inflammation — known to exacerbate symptoms — in people with the genetic disease, a new study demonstrates. However, after a year of treatment, CF patients on Trikafta still show differences in airway inflammation compared with…
Discussion
I turned 55 this month, and I am giddy about it. Not quietly pleased. Not gracefully accepting. Giddy, the way you’re supposed to be at 21 and rarely are, because you don’t yet know what a gift a birthday can be. I know because I’ve spent almost six years breathing…
Discussion
The Cystic Fibrosis Foundation is funding a new research project that aims to develop a cell-based strategy for rebuilding damaged airway tissue in people with cystic fibrosis (CF). Do-Yeon Cho, MD, a professor in the Department of Otolaryngology–Head and Neck Surgery at the University…
Discussion
There are three F-words that describe a few of the changes I’ve experienced since having a double-lung transplant eight years ago. After living with cystic fibrosis (CF) lungs for 30 years, having new lungs has been a miracle. It hasn’t come without adjustments, though. The three areas most affected…
Discussion
Using two new sensitive lung tests, researchers in Europe were able to identify subtle changes indicating worsening cystic fibrosis (CF) in people with the genetic disease — even when standard breathing assessments showed stable lung function. These tests — an oxygen-enhanced MRI and the multiple breath washout with Short…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
Get regular updates to your inbox.
